At the end of June NewsChannel15 brought you the story of a local teenager battling a rare disease, Guillain-Barre syndrome. Eli Guise has been hospitalized for nearly two months, but the 13-year-old has made tremendous progress battling the rare disease that’s attacked his nervous system.
After ringing the bell at Riley Hospital for Children, signifying he graduated, Eli is going home.
His mom says everyone is set to leave the hospital.
“We’re ready. I’ve been home for just quick stops, going other places. I mean he’s ready to get home,” says Jana Guise, Eli’s mom.
Guillain-Barre syndrome is so rare the CDC estimates there are 1 to 2 cases per 100,000 people.
The disease attacks a person’s nerves.
“And for whatever reason, their own immune system starts working against their peripheral nerves in the body. So, this doesn’t affect the brain and the spinal cord, it actually goes after the outlets, the more distal nerves, usually in the feet then the distal legs, and it can also involve the hands,” says Dr. Chuck Dietzen, Chief of Pediatric Rehabilitation.
GBS left Eli nearly paralyzed, where even the smallest movement in his toes meant progress
But after working hard in therapy, he’s literally taken the steps to get back to his normal life.
Placing a butterfly on the wall of fame at Riley’s was the final task Eli needed to complete before going home.
“I told him every day that he’s my hero, it was a tough thing to watch, and you know there were times he didn’t want to do things, I told him I’d takes his place, and I can’t, but I was already proud of everything he did and how hard that he worked, and I always told him that he’s my hero,” says Jana.